To HIV researchers, I am an ‘elite controller’ – someone whose immune system has enabled them to live for decades without symptoms or medication. I hope that one day science will understand this tiny but lucky minority
On 21 February 1986, I was diagnosed HIV positive. I was 22. It was the day of my sister’s 21st birthday. That solemn Friday afternoon, my life changed for ever. We had planned a surprise party later that night. My sister was already seven months pregnant with my eldest niece, and I had gone to central London to find a card featuring a Black mother and child. Failing to find anything culturally appropriate, I decided to pop into the STD clinic in Chelsea to pick up my test results. I knew nothing about HIV or Aids; I’d never even heard of the acronyms until a week or so earlier.
Unsurprisingly, I didn’t end up partying with my sister that night. Celebrating the promise of new life while contemplating my imminent death proved too much. I spent the next several days hiding away in a darkened room, crying uncontrollably.
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